Access to data & questionnaires
A database open to the scientific community
Elfe’s truly multidisciplinary infrastructure allows the information it collects to be made available to the whole research community, under conditions that ensure data security and confidentiality.
Data yielded by the Elfe study can be accessed by any public- or private-sector research team that has a specific research project providing it meets the conditions set out in the data access charter.
Requests for access are made via Pandora, a secure Internet platform that provides information online about the study and its databases. This platform allows researchers submitting a request to post a description of their team, file their project and select the precise variables involved in their research.
The research teams that helped to design the Elfe study are given priority, enjoying exclusive access to the data for each study phase for the first 18 months after they become available. At the end of this period, access to the data is extended to the whole scientific community.
Elfe data access committee
Made up of representatives of the project team and associated researchers, Elfe’s data access committee (CADE) has the task of examining and responding to all requests to use this information. Its remit is to check the eligibility of the submitted projects, and in particular their scientific relevance to Elfe’s research goals, feasibility, whether they are in the public interest, and the risk of participants being identified. Where necessary, an ethics group can be consulted about particular projects.
In order to gain access to Elfe data, members of research teams not affiliated to Elfe must not only have their project approved by the Committee for Access to Elfe Data (CADE), but must also submit a commitment to comply with methodological guidelines to the French Data Protection Authority (CNIL). Researchers must systematically seek permission from CNIL if their project requires access to sensitive data.
Questionnaires and other useful documents
Maternity unit survey
Survey at 2 months
Diet between 2 and 10 months
Survey at 1 year
Survey at 2 years